Hi all -- Here are a few updates...

Brad is continuing to have knee issues with his ITBS. We're hoping he'll be able to ease into it again this week sometime -- we have 2 more big mile days & he really needs to be able to get them in at some point.

Sorry to those of you who have been waiting for an update...I was slow to get it out to you. I have attached Heather's updates from today. There is nothing definite yet, but it'll give you an idea of what has been going on since yesterday.

(From Heather on the CarePages)
DAY +111: WAITING IS NO FUN
We did in fact sleep last night. I think we were all so tired that there was no other choice. Hunter was feeling crummy after all of the meds and the transfusion so he wanted "a hot bath and bed." He is still not really eating and drinking much, so for the last few nights he has been back on IV fluids. His creatinine was already very high yesterday, so fluids are important to take the stress off of his kidneys. Branon and I have decided (maybe more for us than anything) that a CBC is warranted today. His legs are still covered, so it is hard to tell and I am not one who does well just waiting for bleeding to take him in. The appointment is at Dr. Cook's at 11:30. I am a little more rested today which has given my mind more energy to run...non-stop. Thankfully, Robin is just a few houses away and she walked down for coffee this am.....what an amazing blessing. David and Robin provide an amazing amount of support and encouragement to us. (They even planned a night out...including babysitters for all 7 kids....for the 4 of us. We got to go to a wonderful dinner together. It was a fun and special surprise....we went on Sat night). I am really contemplating calling to use a massage gift certificate that some friends gave me(Thank you Laurel and Paula---What an pleasant surprise. Sorry for the adventure when you dropped it off :-)LOL). All of my neck and shoulder muscles feel very constricted. I may work on that for Thursday. I'll see how tomorrow goes. I will post his counts after our blood draw...as long as we are not racing to Denver again. I actually packed bags last night just in case. I figure it is a lot like when you are pregnant....if you pack a bag, you won't go into labor. Let's hope the same phenomenon applies here :-) Thank you for the prayers for sleep.DAY

+111: PART 2 We came into CHOA(Dr. Cook's office in the Springs) for a CBC....platelets were an amazing 4,000 (can you sense my sarcasm????) So, we arranged to have the platelet transfusion done here. At 4pm, he finally got his leukocyte reduced, irradiated, and washed platelets. They will run over an hour and then we will re-check the level. In Denver, they are thinking it COULD be antibody/ATG but hate to speculate until they see his marrow tomorrow....here comes a lot more prednisone(YUCK!!!!) But, if this IS the cause, it is so much better than the alternative, I will be thankful. I am exhausted again....it takes energy to be this stressed(LOL). If all goes well and his platelets go up to around 20,000 or higher, we will be at home tonight and leave for Denver around 7am....rush hour time...again, what fun. Hunter is grumpy today(I don't blame him) and is also eager to find out what is wrong with him. It is hard to express anxiety and worry when you are 9. Please pray for smooth and easy sedation tomorrow for his biopsy at 11:30am. We need a great sample that really represents his marrow so we can move forward with treatment for whatever is causing this mess. Thank you.